With You Until PH Isn’t

Pulmonary Hypertension (PH) is a rare disease of the heart and lungs it leaves patients alone and afraid it leaves physicians frustrated and discouraged it is fatal but we plant to CHANGE THAT NO-ONE ELSE CAN DO WHAT WE CAN DO TOGETHER BECAUSE NO-ONE ELSE HAS DONE WHAT WE HAVE DONE TOGETHER IN THE FIGHT…

Scleroderma: Rafaela’s story, Spain

I felt better having a diagnosis, but furious that there was no solution for it. So, it was a fight, a very hard one. The first thing you do is look it up – read. Back then the outlook was very black, and life expectancy was ten years maximum. I went to a conference in…