Endometriosis Feels Like Being Punched Up The Vagina With Sharp Knives | Body Language

Endometriosis Feels Like Being Punched Up The Vagina With Sharp Knives | Body Language


Endometriosis feels to me
like someone’s hand is literally clenched up in a fist with all the knives
on all of the digits and then it goes right up
inside you, just near your lungs, and then it, kind of, punches you two, three, four, hundreds of times. The pain makes you feel like
you’re living outside of your body – like you’re almost the shadow and your body’s just, kind of,
walking alongside, which feels really weird. When I’m suffering from
a really bad flare-up, my mind feels foggy. It feels like there’s butterflies
going round in your mind, just throbbing and throbbing. You’re just a thing.
You’re no longer a person. Actually, your pain has just taken
over every single ounce of you. At least one in 10 women
have endometriosis and we wait on average seven
and a half years for a diagnosis. The first time I heard the word, I’d already been sick with
the illness for 10 years. I had to Google it – endometriosis.
I definitely couldn’t say it. It almost sounds made up,
like a mythical character. Normal. That is a very dangerous
word. I was told my pain was “normal”
for nearly a decade. “Oh, it’s just normal. You’re going
to have pain during periods “and you’re going to have big clots
come out of your vag.” And that just made me feel
like I was just… I was just being stupid, really. Maybe I didn’t have anything
wrong with me. So, I was driving to work. I suddenly felt a crippling pain go
literally from my head to my toe. I became paralysed in my legs and I
felt like I couldn’t hit the brakes. I then called an ambulance
and I called my work. I was, like, “Hi, I’m really sorry
but I won’t be in. “I’ve lost feeling in my legs,
so… Yep.” And they basically said,
“Are you absolutely mad? “Why are you calling us? You’re
in an ambulance, for God’s sake.” I think that so many women out there
are this simmering pot that’s just bubbling, and then
something extra gets dropped in and then everything just explodes. Everything goes onto the walls,
on the floor, everything. After every episode of pain,
you reset your memory. You know, your body and your mind
doesn’t want you to remember because it’s constant trauma
all the time. If your mind truly remembered
every episode and how it felt, you wouldn’t probably be able to
live through it. If I could wake up tomorrow
without endometriosis… It’s really… It’s really so, so
hard to imagine. I think everything
would be level again and that I wouldn’t have to
be in a constant imbalance with every aspect of my body. It’s almost like in those films
when you have a ghost and the ghost comes back
into your body and then they awake again. It would be like a reawakening. I’d be back to me, which is really
hard to describe because I just can’t remember
what that is.

53 Replies to “Endometriosis Feels Like Being Punched Up The Vagina With Sharp Knives | Body Language”

  1. Yep, that's how I feel. Sometimes the pain is so intense that I feel high/woozy from the pain alone and my eyes feel puffy like I've been crying for hours when I haven't been. I've had 3 surgeries for Endo and none of them have eased any of the pain even after excising all of the growths each time and confirming they were Endometriosis, so now even if there's more in there, which I'm sure there is, no surgeon will open me up because what's the point?

  2. From the ages of 12 to 20, I had “uterine cramps” on the first day of my period that made me vomit every 20-30 minutes from the time it started for about 5 hours. For some reason, the vomiting stopped on its own, but I was always, ALWAYS in bed for the first 2 days of my cycle with pain so bad sometimes that I wanted to die, despite taking 1200mgs of Motrin every 4 hours. I developed panic attacks every month as the first day of my period drew near. That changed when I finally had a laparoscopy at the age of 26, and was told that a large mass was found on the cul de sac of my uterus, where a cluster of nerves are located. I got pregnant right away after the surgery, which was the treatment at that time. I just had a hell of a time, begging my OB/GYN to give me a hysterectomy at 38, after having 2 kids, or to prescribe narcotic pain meds, bc I routinely missed 1-2 days of work every month. Since my mom and sisters had “periods” until age 60, I wasn’t a candidate for a hysterectomy. I never did well with birth control pills, later finding that I have a blood clotting disorder called Factor V Leiden Insufficiency. BC pills can cause blood clots, and bc of my disease, I was already 40% more likely to die of a stroke or deep vein thrombosis without the Pill. Faced with this news, my OB/GYN inserted a Mirena IUD, and at 45 years of age, I finally found relief from my detestable periods, and am so thankful I didn’t experience a TIA or full on stroke while taking the Pill, for the brief times that I took them!!! Endometriosis made my life hell for so long, even though I know women who had a much worse time than I did.

  3. I know exactly what you mean by the pain I haved it for 20 years until Thanks God I went to a doctor who understood and I have a life again. My advice is if you have to go to 4 o 5 doctor until you feel better do it.

  4. It took around ten years to diagnose me too. One specialist told me periods were just painful after I hobbled into A&E

  5. I was one of the 1 out of 10 women to have endometriosis. About a year after started my period… every month was a horror story for me… I’d take loads of pain pills, sometimes wouldn’t help so had to go to the med24 for a shot to relieve the pain. Eventually at 21 years old I went to my first gynaecologist appointment… she was left shock because hadn’t seen this intensity in ages. I was between stage 3 to 4, which if left untreated, later on in life would of turned into cancer. Soon after had a laparoscopy… So glad the pain is all over

  6. It took me 5 years to get diagnosed with endometriosis. My GP always said it was normal to feel pain, but with every period i had so much pain that i was vomiting and trembling and crying cause I couldn’t handle it. I will always thank my Gyn, she literally saved me.

  7. I have no idea why doctors don't listen, it happens to people with severe back pain, any form of stomach cramping. They just do not listen to how severe you say your pain is. Look, most women can deal with their periods, if one comes into your goddamn surgery and says "excuse me doctor my period pain feels like my vagina is being fisted but with knives." Then you know that isn't a normal level of pain, right? It's even weirder because I think actually the majority of GPs in Britain today are actually women, and should know what is normal.

  8. I got my diagnosis at 16 due to me pushing the doctors. Went to as many doctors as it took and was determined to get the surgery. Finally found a doctor willing and I was correct. I have endo. It's so much nicer having a diagnosis

  9. Makes me mad how women's pain and distress were/are perpetually minimized, because why – it made us easier to control. Half the population.

    I've pain during periods but nowhere this awful. I'm glad to see culture is changing for women's health, something I value for my daughter's health and their children.

  10. I haven't been diagnosed but this description sounds exactly how I feel episodes usually occur a week before and it lasts several hours to several days of just extreme pain and vomiting and even when I take pain medication it doesn't work. I was even given prescribed painkillers and anti nausea and it still didn't work. I'd been trying to get a diagnoses but all anyone ever tells me is that its "normal" or that its something I ate. It isn't something I ate and it isn't normal to feel like someone is tearing up your insides with a knife

  11. I had posted this on another related video. I had severe pelvic and period pain for 28 years…then upon finally hearing a celebrity talk about endometriosis, I was like 'this is what I have', then decided to ask the next doctor. Dismissed again. I was only taken seriously when I lied about not being able to get pregnant. ONLY then did the ball start rolling, and I was finally diagnosed. I did not want kids, I was too sick to ever want kids, and I had to lie in order to be heard….what does that say about our society and medical world?

  12. Being told that "It's normal", "Just get over it already", "'There's nothing wrong with you – it's all in your head"….. When you're going through a pain flare and can't do anything, being told "Stop being so lazy and making excuses"….

    I don't understand why it's not raised awareness of when it's more common than diabetes… The unnecessary traumatic years of pain and debilitation – the amount of damage that causes in so many different ways!

    Kudos to BBC3 doing this video! Just wish it wasn't such a rare thing to happen.

  13. I'm 13 now, but I've had this since I was 8. It's really difficult to deal with. I feel awful for all the girls who have it worse than me.

  14. Seriously, the first sentence of this is video is the PERFECT description of what this disease feels like in my life and body.

  15. Really brave to talk about this! I feel severe pain too, but as everyone keeps saying it is normal, I use to feel kind of ridiculous. But there are days where I can't even stand up properly.

  16. my legs are having spasms just thinking how painful it must be. i do that every time i imagine some kind of wild pain, the part of the body that i think of being in pain just spasms out

    and i look like a total jerk

  17. For me, it feels like knives slowly stabbing the crotch, knives slowly stabbing the anus, and icepicks prodding my ovaries. Then there’s pain in the legs, tension and tightness all over and a massive headache from all the crying and cringing in agony. Just had surgery…and it can’t be cured apparently. Only periodically treated. It’s a miserable, helpless disease and I wouldn’t wish it on anyone.

  18. Gyneacological conditions can cause emotional, physical distress. I am diagnosed with double uterus, double cervix and double vagina, fibroids and ovarian cysts. Living with chronic fatigue and pain, irregular menstrual periods, insomnia and uncertainty on a daily basis. All i seek is adequate medical interventionand support that can help menage the symptoms however its seems most of these conditions are ignored. After 3 key hole surgeries, 2 hysteroscopy and evacuation of the womb following a missed miscarriage hmmmm am still stuck with the pain.

  19. I started my period when I was 10 and have always been told I had "bad periods." Another favorite is "you probably had cysts and they ruptured." It made me feel crazy and like I was overreacting. I would seriously miss 1-2 days a month from the pain, and it started impacting my school attendance negatively. I dealt with that for 11 years and just got diagnosed this year with endo. It all makes sense now. The extreme fatigue (always told I had mono), the bloating, the pain after sex, the abnormal bleeding, the back pain, all of it. If you have any of the symptoms, go see a good doctor and find out what treatment options work for you!

  20. My bio teacher self diagnosed herself with endometriosis, when she was in college she did her own ELISA test and saw abnormal cell growth so she decided to get one done at another hospital and that's how she knew for sure that she had endometriosis, luckily she got good doctors, got a surgery done early, and also has a kid now.

  21. Thank you all so much for your comments and support x It is inspiring to see that my words resonate with lots of women x x

  22. I was put on birth control when I was 14 because of extremely irregular and painful periods. It helped up until March 2017. I felt a poping sensation and it went downhill from there. My periods became so bad that for the duration of them I couldn't get out of bed because I had pain shooting down my legs and up my spine. A week before mt 21st birthday (may 2018), I was finally diagnosed by laparoscopy with a KT laser with severe (borderline stage 4) endometriosis. They found tissue plastered over my right ovary, my uterus, and behind my appendix. I have scar tissue between my back and uterus that they couldn't remove. So even though I'm in a lot less pain, I will never be pain free. My periods are still debilitating at times, so I've chosen to go through a year long treatment with lupron, which causes severe problems if taken too long. However, it shuts everything down, so for at least a year, I shouldnt have to worry about missing out because I can't get out of bed. I actually recently got fired from my job because of missing work too much and having to leave 3 hours into my shift due to the pain getting too bad.

  23. What is up with these sadistic doctors in the UK?? My country is pretty shitty and corrupted, but when I go to the doctor no matter how minimal my symptoms are I get help!

  24. I don't know if I have this but my period is weird. One time my period is barely anything but I still get bloating and a little cramping. Then the next period its hell. Like glass being shoved up. I get sick and tired. I cant even move. I have a lot of blood which got me sh00k because the last one was barely anything!!! Idk anymore. I the pain is so bad sometimes I cry but it feels okay for a while then ZOOM IT HAPPENS AGAIN. Its an off and on thingy. Also it hurts to pee like a urinary and passgas. Gross I know srry. Its kind of sad im only 14. I dontplan on having any kids tho at least not mine cause i have alopecia which is a loss of hair everywhere. I dont have hair lashes or eyebrows. Barely on my body. Soooo i dont want to pass it on to another child since it sucks and is bad.

  25. I get pain every, single, day. For me, it feels like Freddy Kruger is living inside of me just tearing me up, as well as there is a blowtorch that goes off with every movement I make. 😔

  26. Visit www.endometriosis-india.com for more information about why treatments fail and why laparoscopic excision in expert hands is currently the only way to prevent recurrences.

  27. Is this pain everyday or only during pms? Should I ignore it if it’s only during my pms and just keep treating with pain killers? I’m confused

  28. They can figure out how to make a guy get a boner at age 200 but of course ancient disease endometriosis the medical geniuses can’t find a damn thing for it!!!!! It SUCKS

  29. I was prescribed really strong pain killers for adults with major pain when I was 13 for my periods and they never helped at all. The best thing I ever did was to go see a gynaecologist and have her tell me it’s probably endometriosis ( after people convincing me I was crazy for thinking it for months ) and getting her to prescribe me the pill to stop the pain. I haven’t had any vomit inducing pain in a year now and it is the thing I am most grateful for in my life

  30. God I feel the same. I've had my period since I was 13 and now I'm 18 and finally went to the doctor about my terrible cramps and ended up getting an ultrasound to see if I had any cysts on my ovaries. Turns out I didn't have any but my doctor believes I have endometriosis. My cramps are so bad to where my legs numb up, I have to take 9 ibuprofen to settle it, I get cramps when I to poop and sometimes even pee when I'm not even on my period and it just feels like I'm going to pass out if I dont do anything. I wish this horrid thing was easier to get rid of or easier to diagnose because I believe a lot of women go through this but never get help

  31. I'm a pre-med student, and with all the ignorant and dismissive doctors that I've made, I've begun to question if this is the path that I want to take in life.

  32. I had moderate pain during day 1 and 2 of period and that was it. No further symptoms! Only during a scan they found an endometrioma and 7cm in size! Went for laparoscopy and they discovered I had stage 4 endo!!!!!!! And that’s without symptoms!!!!!!

  33. I was told it was 'normal' for 20 years! It got to the point where my pain had become 24/7. The amount of times I collapsed and sent home from work is crazy! Eventually, they decided after 20 years to investigate. 6 specialists later and they thought 'Oh, let's send you to gynae' only for them to tell me it was IBS and I should take fybogel! My mum who was so fed up with seeing me in constant pain decided to prod them to investigate. Eventually, I got a laparoscopy. After it was over and I was back on the ward, the same consultant came to see me. He sat on the bed, held my hand and said 'I'm so sorry but you have endometriosis'. What a huge turnaround in his opinion! 5 surgeries later and I had had a total hysterectomy as there was nothing else they could try for me and I couldn't take the pain any longer. It is a horrendous condition!

  34. Well I'm not diagnosed with it but I think it's my case… I didn't even know that this existed. Once I was on school trip and it started really hurt like this. I had to go like 2 kilometres in pain while I was crying my eyes out. I asked my teacher if I can go to my grandparents house because it was nearby and she literally smile at me and said no. She said I'm just pretending and that it can't hurt that much. She also said every woman must go through this but I really didn't think so. That day I came home in tears cuz basically all the kids and teachers saw me crying and sobbing like a newborn and it was the worst day of my life.

  35. I dont cry often but this is me now .. Again. In my 30s. Painful as hell. i thought i was ok for 3yrs now…coz i took meds and now its come back. This is not living. I have suffered with this debilitating pain for 15yrs now. And its soo fruatrating when doctors or people u know say its ok or think were lying and over acting.. Its torture

  36. Initially, I felt mentally sick as I was told that this pain is normal and everyone goes through it. I have been often questioned on my "pain retention capacity". I was aghast. Nobody would understand and I wouldn't want to explain because it was tormenting. I am so thankful to the internet for letting me connect to other women who face the same and it makes me feel so much better that I am not alone in this and for letting me understand that mental strength is any day more important than physical strength. So much respect and love to all those wonderful beauties who are out there and battling through this everyday!

  37. https://youtu.be/qQNfAp4oaXc
    If you are suffering even after partial hysterectomy to remove endometriosis, You are not alone, HELP spread awareness.

  38. I was in 7th grade in class and my period started nothing abnormal but the next day I felt like I was going through labor I was crying and screaming in class and getting heat flashes I went to the nurse and she said "just take some pain killers" but nothing worked but today went to gynecologist and I got diagnosed with endometriosis and it all made sense

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